I am not Wonder Woman. Nope, not at all. My body can no longer handle the forces of lifting, twisting, carrying, running, bouncing... I also can't do it all, all the time. I actually have to plan down time! I do have to rest. Although I am not Wonder Woman, I do identify with the comic book characters of the X-men, well, at least I identify with being a mutant. My body is changing, some of my joints, especially in my spine, are turning to bone. It is a protective mechanism, to turn to inflamed joints to stone. It is my mutation.Read More
My word choice is purposeful. The words I use to describe myself, my health, my coping, all have a direct physiological effect on me. What I say becomes what I am feeling. When I say "warrior" I feel myself stand taller, feel stronger, and more masterful. If I say, " it sucks, I can't stand the meds..." I can literally feel my energy fade, I feel myself shrink, the anger and resentment grow, while the RA/AS beast gains power over me. This becomes a battle - a battle between a dark reality (RA/AS does suck!) and empowerment (I can kick this dual RA/AS in the ass).Read More
...Fatigue: the statement of being unplugged by biology, like the electrical-chemical signals refuse to fire. Being out of gas, out of life-force. In gaming terms your character has been poisoned. The number of hearts are irrelevant because they don't work right. In real life, sleep doesn't fix it. Nothing seems to fix it. In a game the poison will slowly deplete your hearts until you become exhausted, the only fix is a hidden antidote. In my body I feel fatigue like someone has turned the world around to mud and I have to push myself to move my muscles and my brain to think....Read More
...I stare blankly at him for a moment. He doubts the existence of us. He doubts the statisticians. He doubts the incredibly important IOM report that sounded the alarm on the numbers with chronic pain. As we sit here, side by side, he doesn't know it, but he doubts me. He can't see what is happening to the person right next to him. I am not not his patient, I offer no threat to his liability, yet he dismisses the reports of pain....Read More
Recent Scientific Articles on Chronic PainRead More
...The reality is that a divide currently exists between the person with pain and the medical community. While some regions are better than others, generally, most people with pain can tell you that when they interact with members of the medical community they feel patronized, dismissed, invalidated, psychologized, treated as a "drug seeker," treated like a second class citizen, and overall, stigmatized because of the condition they live with everyday. ...Read More
Simply: Yes! We really can change our own biology in the pursuit of reducing chronic pain.
It is amazing how much we use our bodies every day, experience our bodies’ sensations every day, and yet often know so little about how to have control over the biology of our bodies.Read More
Pain. The word itself can make heart race and palms sweat. Those of us who suffer with severe daily pain know that this simple word has the power to torment our lives... Pain can change everything. Our story, like many others, involves intense pain, unanswered questions, worry, fear, grief, and loss.Read More
Irritability is key component of the agony of pain. Agony is caused by a brain activation pattern that engages our fight-flight stress response. It is there to help us survive and get out of a dangerous situation when we need to. Seeing that irritability is a natural event co-occurring with pain, we can be more compassionate with ourselves and others with pain, showing more patience with each other and less judgment. While it doesn't give us a free ticket to be rude, it can help us recognize that the irritability itself may not be our fault; freeing us from unnecessary guilt, motivating us to find a path away from the agony of pain, and towards a deeper state of calm.Read More
We've all heard the statistic--Over 100 million Americans live with chronic pain, which is roughly 1/3 of Americans.
There are more people in the US who have chronic pain than cancer, heart disease, and diabetes combined! There is ongoing research and inspiring annual awareness walks/runs for these diseases. There are entire wings of hospitals devoted to these serious illnesses. However, pain for some reason, seems to be left in the shadows.Read More
Science: (n) Systematic knowledge of the physical or material world gained through observation and experimentation. Science is the basis of everything in the Mastering Pain Method...Read More
Stigma of chronic pain is starting to grow in awareness. It is everywhere and few people with chronic pain go untouched by its mark--its disgrace. It is not always obvious or overtly stated. It is most often experienced in covert messages...Read More
Our logo, like most of the images, acronyms, and concepts we use has many meanings. At its most basic structure it is a representation of the chemical structure of an endogenous (natural) opioid...Read More